Excerted from a blog written by PHA Executive Vice President Carl Hicks...
Not everyone knows that thanks in part or whole to PHA that while we only had 100 or so physicians treating PH in 2001 we now have closer to 10,000. Or, that in some cases these doctors are only seeing one or two patients a year so there is a serious need for medical education that PHA delivers through 5 different medical education programs that meet over 60 times a year in addition to our PHA Online University. Together PHA’s programs served nearly 112,000 people last year who wanted to further their knowledge about PH. Publishing our medical journal Advances in Pulmonary Hypertension, to the tune of 40,000 copies every quarter, furthers that education effort around the world.
We all know our highest mission is finding the cure for PH, but not everyone knows that PHA funds and administers five separate research programs to include the world’s only pediatric research fund and that over $14 million in research commitments have been made since 2001. Until we find the cure, increasing the quality and length of life is next for us at PHA, and I am so proud to be able to report that even though there were zero (0) FDA approved therapies for PH in 1994, now there are 12 with more on the horizon.
Patient outcomes are always better at medical centers that pull together all of the assets needed to combat this disease. Accordingly, PHA has undertaken a mission at our physicians' requests to certify over 126 PH Care Centers by 2016. Knowing that support for one another out in our communities leads to better outcomes as well, PHA now supports over 245 support groups nationwide led by over 300 of the finest people in our PHamily. Overall, they meet more than 600 times a year.
Ultimately to be as successful as we must be, we must create greater awareness about PH. Thanks to PHA in the last month more than 2,100 NYC taxicabs carried PHA’s public service announcements live on the screens facing the passengers. This led to more than 563,000 plays in only two weeks and 845,000 impressions. Not stopping there our PSAs have been supplied to over 4,000 television stations and have been seen on American Idol among other top-ranked shows. They can also be heard on greater than 9,000 radio stations.
I could go on and on but perhaps the numbers I am most proud of are these. For the past 11 years straight, our PHA has been awarded the absolute highest rating possible, 4 Stars by the independent non-profit evaluator, Charity Navigator. This places PHA in the elite of the elite of nonprofits among less than 1% of the thousands and thousands of charities evaluated annually. Indeed, PHighting back through PHundrasing is an activity that I can fully espouse and it will always get my support. See www.PHAssociation.org/Fundraise.
Everywhere I carry this message I am greeted by the pride of our community that is so clearly earned and justified. It is a pride in the only organization that works directly for each of us affected by this disease, 24/7.