Tuesday, March 18, 2014

A PAH Talk Show … That Needs You!

The Food and Drug Administration has approved twelve drugs for PAH, but those drugs aren’t perfect. Tell FDA that there is more work to be done.

On May 13, in White Oak, Maryland, FDA will host an informal, “talk show” style meeting where PAH patients can share what it’s really like to live with pulmonary arterial hypertension. As with any talk show, you’re most likely to get to tell your story if you attend in person, but if you can’t make the trip webcast participation with online voting is available.

For those attending in person, PHA is organizing buses from Maryland, New York and Philadelphia.

Take these two steps to RSVP:
  1. Register with FDA. Whether you are attending in person or by webcast, you must register on FDA’s website. All members of the PH community are welcome, but PAH patients and the parents of young patients will do the talking.
  2. Claim your seat on the bus. For those who would prefer not to drive to the FDA campus, buses are available from pick up points in New York, Philadelphia and Maryland. Complete this form to claim your seat on the bus

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