Thursday, October 31, 2013

Boo! PHA Staff Celebrate Halloween


Check out our photos on Pinterest of our staff in their Halloween costumes! Visit PHA's Pinterest boards

Pulmonary Hypertension Spotlighted at CHEST

Five staff members represented the Pulmonary Hypertension Association at this year’s meeting of the American College of Chest Physicians.
  • Rino Aldrighetti, President & CEO
  • Carl Hicks, Executive Vice President
  • Lisa Beth Gansberg, Executive Director, Midwest Chapter
  • Michael Patrick Gray, Director, Medical Services
  • Briana Rivas-Morello, Patient Education Associate
Many physicians with whom PHA works closely gave talks on various diagnostic and management issues related to PH to a particularly receptive audience, given the increased PH presence at this year’s meeting.

Read this MedPage Today article on how pulmonary hypertension was in the spotlight at CHEST

Wednesday, October 30, 2013

Free Lunch and an Opportunity to Make a Difference

Last chance! RSVP for PHA’s free Congressional Luncheon until Friday, Nov. 1. Can’t attend? Make sure pulmonary hypertension is a priority for your Members of Congress by inviting them to the Luncheon.

Learn more and RSVP

PH Article in BuenaVida Magazine



Pulmonary Hypertension made front page news in BuenaVida, a quality of life magazine with a readership of 340,000. Want to find out how you, too can raise awareness of PH in the media? Check out PHA’s Online Media Guide

Tuesday, October 29, 2013

Wine & Design



If you are in the Altamonte Springs, FL area on November 3 and painting and wine sounds like your kind of combination, come and join us for a two hour painting lesson at 2:00 o’clock that afternoon. You will be instructed on painting a Hawaiian sunset and all supplies will be included. All you need to do is register. Registration will cost $35 and a portion of registration revenue will go directly to PHA.

Wear Purple Friday for PH Online Awareness Day

Friday we are kicking off Pulmonary Hypertension Awareness Month with a day of worldwide awareness online. For PH Online Awareness Day this year, we are asking everyone to wear purple/periwinkle, the color of PH awareness, and ask your friends and coworkers to do the same. Then take a picture of all of you wearing purple and post it online with a message about PH and your story. Then send us your photos so we can share them with the rest of the PH community. Let's color the world purple this Friday!

RSVP to PH Online Awareness Day

Parents: Webinar Tomorrow Night

Join us tomorrow for an overview of pediatric pulmonary hypertension and potential pediatric research.

Learn more and register

Happy Birthday, Ryanne!



Happy Birthday to Team PHenomenal Hope member, Ryanne Palermo!

Join us in sending your birthday wishes for Ryanne on Facebook

Did you know that one of Ryanne’s favorite childhood books was “The Giver,” and one of her favorite movies is “The Goonies”? Learn more about Ryanne, how she got started in cycling and what she thinks about being a member of Team PHenomenal Hope

Monday, October 28, 2013

What is the Relationship Between Sleep Apnea and Pulmonary Hypertension?



The 2004 American College of Chest Physicians (ACCP) consensus panel found that pulmonary hypertension occurred in 17 percent to 53 percent of individuals with obstructive sleep apnea (OSA), whereas a review from Johns Hopkins found that 82 percent of patients with pulmonary arterial hypertension had underlying sleep-disordered breathing. The nocturnal drop in oxygen impairs nitric oxide synthesis and causes vascular remodeling which can lead to the development of pulmonary vascular disease.
However, whether OSA independently causes clinically significant pulmonary hypertension remains controversial. Thus, the current ACCP guidelines do not recommend evaluating patients with OSA for pulmonary hypertension unless it is clinically suspected. However, patients with pulmonary arterial hypertension should be evaluated for OSA.

PHKids4aCure 5K Run/Walk

We are inviting anyone in the Houston, Texas, area to join us on Nov. 9 for the PHkids4acure run/walk. PHkids4acure was founded and inspired by two girls and their families from the area named Shaye and Emily. The 5K will be followed by an awards ceremony, live entertainment, kids activities and a raffle. All proceeds raised will go directly to the Pulmonary Hypertension Association for research in helping us get that much closer to a cure so Shaye and Emily can have a future.

Learn more and register

Question of the Week: Plans for Awareness Month

Question of the Week: What are you planning to do for Pulmonary Hypertension Awareness Month this November? Respond in the comments below. 

Sunday, October 27, 2013

PHor the Love of Jude

Join us in Denton, Texas, on Saturday, Nov. 09 for Jude’s PHamily of PHaith 5K PHun Run. The event, in memory of Jude Daniel Sawyer who passed away Dec. 6, 2012, at the age of 11 months, will be happening in South Lakes Park. There will also be a silent auction. Registration is $25 for participants 16 & over before Nov. 7 (On-site registration is $35) so register now. If you can’t attend but still want to support, you can register as a Virtual Runner for $15. We hope to see you there!

Saturday, October 26, 2013

4th Annual Breathe Easy 5K is Nov. 9

PHA is hosting its 4th Annual Breathe Easy 5K to raise money and awareness of pulmonary hypertension in the Albuquerque community. Registration is $25 for adults, free for children 12 and under, and includes a T-shirt. The event will take place on Saturday, Nov. 9, with registration beginning at 7:30 a.m. that morning. The walk/run will start at 8:30 a.m. at the Albuquerque Academy Outside Track in Albuquerque, N.M.

Learn more and register

PHA Canada’s Conference Video Released

Missed PHA Canada’s 2013 National Conference in Ottawa? You can pretend you are there by watching the Conference video:


Friday, October 25, 2013

Sarah Smiles in Upstate N.Y.



PHriends in upstate N.Y. – what is on your calendar for Saturday, Nov. 2? Be part of the 3rd Annual Sarah Smiles PHun-Raiser! Enjoy entertainment, food, crafts and a raffle while contributing to resources and support for the PH community.