Wednesday, December 11, 2013

PH Bill Has Six New Congressional Co-Sponsors Thanks to PHers' Outreach

PHers in front of the U.S. Capitol building in Washington, D.C.
To see more photos from PHA’s Congressional Luncheon,
visit PHA’s Facebook page.

The Pulmonary Hypertension Research and Diagnosis Act (H. 2073/ S. 1453) has six new co-sponsors thanks to the advocacy efforts of several PHers who visited their Members of Congress. Last month, PH patients, caregivers and medical professionals came to Washington, D.C., to attend PHA's Congressional Luncheon. Luncheon attendees from the PH community mingled with legislative staff, sharing stories about life with pulmonary hypertension and listening to remarks from leaders in the fight against the disease. After lunch, PHers met with legislative staff in their Representatives’ offices to request co-sponsorship of the Pulmonary Hypertension Research and Diagnosis Act.

Julia Feitner shared her thoughts about why she was excited to come to the Luncheon, “I chose to attend the Congressional Luncheon to have my voice heard. PH research has saved my life, and I wanted to do what I could to help further research and promote early diagnosis to help others patients. For me the best part of the event was ‘we the people’ participating in our government the way it was intended and speaking with our representatives about what’s important to us.”

Six Representatives were so moved by the stories Julia and others shared, they agreed to co-sponsor the PH Research and Diagnosis Act. Here’s a list of the most recent co-sponsors:
  • Rep. Gerald Connolly (D-VA)
  • Rep. Joe Courtney (D-CT)
  • Rep. Steve Israel (D-NY)
  • Rep. John Larson (D-CT) 
  • Rep. James Moran (D-VA)
  • Rep. Charles Rangel (D-NY)
  • Rep. Tim Ryan (D-OH)
Weren’t able to travel to Washington, D.C., to visit your Members of Congress? You can be part of PHA’s grassroots advocacy network, the 435 Campaign, no matter where you live! Let us know that you want to make a difference by educating your Members of Congress about PH. We’ll send you the resources you need to call, write or even visit your senators and representatives at their offices in your state. Contact Elisabeth to get started at ElisabethW@PHAssociation.org or 301-565-3005 x753.

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