Friday, May 3, 2013

New Blog from PH Community: PH Plus

Many pulmonary hypertension patients are diagnosed with PH in association with one or more related conditions. Research shows that up to 30% of scleroderma patients, 20-40% of sickle cell patients and one out of every 200 HIV patients develop at least mild PH.

Other conditions commonly associated with PH include mixed connective-tissue disease, congenital heart disease (CHD), chronic obstructive pulmonary disease (COPD), hereditary hemorrhagic telangiectasia (HHT), sleep apnea, liver disease and lupus. PH has also been linked to the use of certain drugs and toxins, including fenfluramine, dexfenfluramine and methamphetamines.

The new PH Plus blog is a place for community members living with PH and an associated condition to read more about others living with multiple chronic conditions, to share their own stories, to raise awareness and provide another point of connection for folks. 

Check out the inaugural post about Jenny Klick of Winter Springs, Florida Having who has several chronic illness including lupus, fibromyalgia and Sjogren’s syndrome, in addition to her PH. 

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