Submitted by: Hermalinda Avila, patient
Dr. Balasubramanian made it clear that it would be a 50/50 effort - he would do his part in treating me, but I had to do my part, too, if I expected him to help me. Just then I saw that little ray of hope. I began Remodulin therapy on Dec. 1, 2011, and of course the side effects and my recovery are another story in itself. It is now December 2012, a year and a half after the cardiologist said "take her home and make her comfortable because she only has months to live."
Well, on December 1, 2012, it was my proud honor to participate in the Lemoore, Calif., Christmas parade representing PAH awareness. My family and many of my friends proudly marched in the parade representing PAH awareness. The thing is, they didn’t carry a picture of me as a memorial - I led the march as a surviving PAH patient. I am the "Zebra."