Friday, August 29, 2014

PHA Offices Closed Monday

PHA staff at 2013 PHA on the Road forum. You too can have this much fun
at our free forums coming up in September in Houston and San Diego!
Register now before it's too late!
PHA's offices will be closed on Monday for the Labor Day holiday.

Have a Happy Labor Day from the staff of the Pulmonary Hypertension Association! We plan on having fun...

Question of the Week: PH Events

Question of the Week: What is your favorite part about PHA's conferences and forums?
Registration closes soon for our free regional forums in Houston and San Diego!

Respond in the comments below.

Thursday, August 28, 2014

PHA Endorses CHEST Treatment Guidelines

The American College of Chest Physicians (CHEST) recently released guidelines for the management and treatment of pulmonary arterial hypertension (PAH) in adults, Pharmacological Therapy for Pulmonary Arterial Hypertension in Adults: CHEST Guideline and Expert Panel Report, in the CHEST Journal. The guidelines are free to view for clinicians, and provide the latest and most accurate treatment guidelines for PAH.

The Pulmonary Hypertension Association (PHA) endorses these guidelines and sees them as a step in the right direction. “Many times physicians are not clearly informed on the latest ways to treat PAH,” said Rino Aldrighetti, PHA President and CEO. “These guidelines help physicians understand the broad range of therapies available and the need for more research to create more.”

The CHEST Guideline and Expert Panel Report provides 79 recommendations and expert consensus statements aimed at assisting physicians in the management of PAH using the latest drug therapies. The guidelines were reviewed and endorsed by the PHA Scientific Leadership Council.

Read the guidelines

Wednesday, August 27, 2014

Registration Closing Soon for Free Regional PH Forums in Sept.

PHA is on the Road in September!

PHA's FREE full-day regional education forum, PHA on the Road: PH Patients and Families Education Forum, will be in Houston, Texas, on Sept. 6 and in San Diego, Calif., on Sept. 20. If you live in these areas please grab your family and friends and join us for a day of interactive presentations, education sessions and networking opportunities with other patients, caregivers and medical professionals. If you don’t live in these areas, please pass this on to people you know who do.

This free forum includes complimentary valet parking, breakfast, lunch, coffee breaks and a kids’ room.

Breakout sessions include:
  • treatment update, including the 3 new ones
  • exercise
  • travel
  • preparing for emergency situations
  • communicating about PH
  • tips on living with PH from other patients
  • caregiver's guide
  • caring for a child with PH
  • and more!
View a complete list of sessions online: Houston | San Diego

Online registration for Houston closes on Tuesday at 3 p.m. ET so register now before it's too late!

Monday, August 25, 2014

Ask a PH Specialist: Preparing for PTE Surgery

The latest "Ask a PH Specialist" feature from PHA's newsletter Pathlight about pulmonary thromboendarterectomy (PTE) surgery for chronic thromboembolic pulmonary hypertension (CTEPH) has been posted online.

Question: As a CTEPH patient, what can I expect from my medical team as I prepare for the PTE surgery?

Read Dr. William Auger's answer

Friday, August 22, 2014

Exercising Mindfully with PH Webinar Next Week

While research has shown that exercise can be beneficial for a PH patient, sometimes finding the right exercise program can be very difficult. Join Dr. Rana Awdish of the Henry Ford Health System to learn how to choose the best program for you. Dr. Awdish will discuss considerations for embarking on an exercise routine, safety considerations in yoga, and how to supplement your exercise practice with mindfulness meditation for stress relief.

Register for Aug. 28 exercise webinar

PH Fact: 15 Breakout Sessions to Choose From at Free Forum

There are 15 different breakout sessions you can choose from at the upcoming Houston regional forum, PHA on the Road: PH Patients and Families Education Forum. Join us on Sept. 6 for some great sessions , including:
  • Current Therapies and Management of PH: How Does My Doctor Choose the Right Medication for Me?
  • Exercising and Dining Better
  • Workability, Insurance and Disability with PH
  • Can You Hear Me Now?: Communicating about PH
  • A Patient-to-Patient Guide for Living with PH
  • The Caregiver's Guide to Surviving PH
See a full list of sessions taking place in Houston and register today!