Wednesday, May 27, 2015

Steps for Stripes O2 breathe Quarter Marathon, Run and Fun Walk

3rd Annual Steps for Stripes O2 breathe Quarter Marathon
Sunday, Aug. 30, 2015
Brookfield, Wis.

Register for the 3rd Annual Steps for Stripes O2 breathe Quarter Marathon, Run and Fun Walk! Join us on Sunday, Aug. 30, 2015, at Fox Brook Park in Brookfield, Wis.

Take the first "step" and start a team, register as a runner or walker, or become a sponsor to join in on the fun and fight against PH!

We are happy to announce Fleet Feet Brookfield as our official running store partner! They are a local run/walk store that carry running and walking shoes as well as other gear essentials for activity. They also offer a free video gait analysis to ensure you select the best shoes. So, be sure to visit Fleet Feet to get geared up for the event!

Additionally, Fleet Feet Brookfield will begin their summer 5K training program on June 20, 2015. This program is geared toward beginner walkers and runners looking to complete their first 5K as well as intermediate runners looking to improve their speed and performance. Learn more about Fleet Feet's Training Group here.

Quad Cities O2 breathe Fun Walk

Quad Cities O2 breathe Fun Walk
Saturday, June 20, 2015
Moline, Ill.

The Inaugural Quad Cities O2 breathe Fun Walk is less than a month away! Signing up is as easy as 1, 2, 3. So, be sure to join in on the fun and fight against PH!

1.) Visit to register for the event! Start your team of friends, family, neighbors and co-workers, join a team or register as an individual. Whatever you choose, there is fun for everyone who attends!

2.) Personalize your fundraising page by adding a photo and sharing your story about why you got involved.

3.) Help raise funds and awareness for PHA!

Tuesday, May 26, 2015

LOIs for PHA Research Grants Due June 5

In line with PHA’s mission to find ways to prevent and cure pulmonary hypertension, the Pulmonary Hypertension Association has committed more than $15 million, over the last fifteen years, to researchers seeking to better understand the disease. This year, PHA is offering more than $500,000 to support scientists who are looking for answers that could lead to better outcomes, new therapies, and ultimately, a cure for PH.

Thanks to PHA’s generous community members and historical partnerships, PHA
’s Research Program provides support for PH research projects ranging from early, exploratory and developmental work, to projects that facilitate mentorship and ensure a future of promising, innovative investigators in the field.

Specifically, PHA’s 2015 Research Portfolio includes funding for the first program focused on pediatric PH research; a grant which encourages investigators to explore novel ideas and avenues that could enhance the understanding of PH; an award which supports faculty-level investigators studying the diagnosis, pathogenesis, treatment or outcomes of PH; and a grant which offers support to a recipient of a mentored career development or patient-oriented research grant awarded by the National Heart, Lung, and Blood Institute (NHLBI).

2015 PHA Grant Opportunities

PHA on the Road Sessions Announced for Atlanta

PHA on the Road, PHA’s FREE patient and family education forum is hitting Atlanta this summer. The event will take place Saturday, June 20, 2015, and individual sessions have just been announced! All patients, family members and friends living with PH are welcome to join.

Sessions will include:

General Sessions
  • What’s Your Type?: Types of PH and Associated Means of Diagnosis 
  • Long-Term PH Management: Current and Future Treatments on the Horizon 
Breakout Sessions
  • Dining Healthy with PH 
  • Exercise and Pulmonary Rehabilitation 
  • Lung Transplant 
  • Tips for Better Living: Travel, Work & Day-to-Day 
  • And more!

Special Support Group Topics

Do your feet look like this? How do water and salt affect your PH? If you live in Southern Colorado, their local support group is bringing a speaker to talk about this very subject. Live outside of Southern Colorado? You can always learn a thing or two about how to reduce salt and why, from other patients, at your nearby support group!

Support groups are meeting and they’re bringing speakers direct to area patients to learn about:
  • Meditation & Yoga
  • Research and clinical trials
  • Working Through The Worries of a Caregiver
  • Fluid and salt retention
  • Understanding the PH Basics

Friday, May 22, 2015

Happy Memorial Day

PHA offices will be closed on Monday, May 25, 2015, in observance of Memorial Day. With gratitude, we honor all who have fought for this country.

Find a PH Email Mentor by Topic of Interest

Looking for a mentor who takes the same medication as you do? Want to talk with someone who knows about going to school or college while dealing with pulmonary hypertension? PHA has a way to help you find a mentor who is right for you. Use our search tool, by selecting a topic of interest, to help you find the mentor who can address your specific needs. PH Email Mentors are caring and knowledgeable PH patients and caregivers who are here for you as a source of support, strength and hope. Mentors are a great way to connect with others who have been in your shoes.