Tuesday, July 7, 2015

Calling All Writers and Bloggers

We are looking for you to share your voice with the PH community. Do you read the Generation Hope Blog? Do you read the PH Plus Blog? Want your voice or your story heard on either of these outlets?

Join the blogging team by emailing Outreach.

Join a PHA Advisory Board

The Pulmonary Hypertension Association is on the lookout for new Advisory Board members. Could this be right for you? PHA Advisory Boards are comprised of persons with a direct connection to pulmonary hypertension. From representing the needs of special populations within the PH community to special projects, our Advisory Board members provide PHA with guidance, recommendations and feedback on programs and services that impact the PH community. These boards generate unique insights that ensure best-quality resources and programming for the PH community. Learn more about PHA’s Advisory Boards or submit an application for Advisory Board Membership.

Monday, July 6, 2015

Pacing Parson Joined by PHA Staff Member

Last Thursday, July 2, in a small town three miles east of Wolf Point, Mont., PHA's National Support Group Administrative Associate, Andrew Hicks, finished his four mile walk with the Pacing Parson. This was mile 27 for the day for Don "Pacing Parson" Stevenson, who recently completed ‪1,000 miles of his 3,000 mile walk. Learn more and share this story with friends and family, and donate to support the Pacing Parson!

Shout-Out to Our PHA PHriends

Thank you to the PHA PHriends for the wonderful work that they have been up to! Just from April to June alone, they've answered more than 600 calls to the support line, spoke with over 100 chat registrants, and have offered words of wisdom and compassions via email to over 75 contacts through email mentors. Thanks to our PHriends and ALL over volunteers across all levels of the organization.

Connect with a PHriend via phone, email or chat or, if you’d like, you can apply to be a PHriend and help other patients like you.

2015 PHPN Symposium and Networking Fun Walk

September 17-19, 2015
Crystal Gateway Marriott, Arlington, Va. 

Healthcare professionals — don’t miss your chance to register for this valuable educational and networking event. The 2015 Symposium will feature engaging speakers from a variety of disciplines and educational sessions showcasing trends and developments in PH. Symposium faculty will include a range of healthcare professionals, such as nurses, pharmacists, respiratory therapists, physician assistants, nurse practitioners and physicians. Register now at a discounted rate.

Join PHA for the inaugural PHPN Networking Fun Walk on Friday, Sept. 18., starting from the Crystal Gateway Marriott. Proceeds will go towards patients' conference scholarships to PHA’s 2016 International PH Conference and Scientific Sessions. Registration includes a T-shirt and other perks. This event is being sponsored by Gilead Sciences. Sign up by checking the box on your Symposium registration form!

One Success Leads to Another

Utilizing the Media Action Network, Michelle Reller has turned a one-time television interview into a yearlong television promotion for pulmonary hypertension awareness.

In August 2014, Media Action Network member, Michelle Reller was interviewed by WJTS in Jasper, Ind. She took the chance to tell her personal story and educate her community on PH symptoms. Michelle’s story was broadcast to locals in Jasper, Ind., and then PHA helped her push her story even further. We shared her interview on our social media and news channels that reach thousands of PHers across the country. Less than a year later, Michelle leveraged the success from her first interview to gain a second interview on WJTS to promote the new Southern Indiana PH Support Group she had started. But Michelle didn’t stop there!

While setting up the interview, she mentioned the PHA’s Public Service Announcements (PSAs) and how helpful they could be to educate the general public about PH. The station manager loved the idea of the PSAs and Michelle connected him to the PHA. Once we were in contact, we were able to provide them with PSAs in two different languages on early diagnosis and the need for research. Now, the PSAs will run on WJTS three times a day for the next year.

Michelle is just one of the many Media Action Network members who are spreading PH awareness through the media, and you can too! Your story is newsworthy, PHA can help you get it out there. Join the Media Action Network to get started today and view Michelle’s interview.

Thursday, July 2, 2015

Subscribe to PHA News

Want to know the latest news on PH and PHA? Sign up to receive PHANews, PHA's weekly e-newsletter providing the latest news for the PH community. Stay updated on stories such as this weeks spotlight on the Supreme Court Case decision on the Affordable Care Act and other highlights:
  • Upcoming Media Training Series Gives You Tools to Share Your Story
  • Long-Term Survivors Meet-Up
  • PHA Chapter Websites Have a New Look!
  • Obreathe Baltimore Walk
Learn more in this weeks issue, sign up and view our archives.