Monday, October 20, 2014

PHers Unite! Color the World Periwinkle Nov. 1

We begin each Pulmonary Hypertension Awareness Month with a worldwide coordinated day of action. On Nov. 1 unite with PHers across the globe to color the world periwinkle!

If you haven't already, order your PH gear and start planning your periwinkle party or happy hour today.

PHers of the world unite!

Friday, October 17, 2014

A Caring Space Just a Call Away

We’d like you to join us for our monthly PHA Patient Telephone Support Group on Oct. 23 at 8 p.m. ET. We provide a safe and caring atmosphere for you to feel supported and empowered by other patients also affected by pulmonary hypertension. In this non-judgmental space you can express your thoughts and concerns freely, develop friendships, share thoughts and learn coping strategies.

Register now

Thursday, October 16, 2014

It’s Dictionary Day!

Let’s celebrate the importance of words and terms together! We have a glossary of pulmonary hypertension terms and an acronym decoder to help patients and caregivers gain a better understanding of the disease. Knowledge is power!

Check them out

Are you #PHAware?

PHA's public awareness campaign, PHAware, just launched a brand new website, PHAware.org, and a dynamic mobile app! PHAware is our megaphone to bring pulmonary hypertension from rare to everywhere. Join us in using this megaphone to spread PH awareness.
  • Spread the word about the new website
  • Share your photos on our photo mosaic
  • Use #PHAware and @PHAware when you share your stories
  • Follow us on Facebook, Twitter, Instagram, Pinterest, Vine and YouTube
Visit PHAware.org
Get the app online or on iTunes, Google and Amazon app stores by searching for: PHAware

Pulmonary Hypertension Caused by Liver Disease

This month is Liver Awareness Month so we would like to share information about pulmonary hypertension caused by advanced liver disease, or portopulmonary hypertension (POPH), a type of pulmonary arterial hypertension (PAH).

Liver disease can cause what is known as “portal hypertension,” meaning increased blood pressure in the veins that enter the liver. This increased pressure causes blood to bypass the liver; as a result, the blood is not subject to the liver’s work, which includes the removal or detoxification of chemicals and poisons in the body.

As a result, the blood vessels of the lung are exposed to possible toxic substances and this can damage the small arteries of the lungs, causing portopulmonary hypertension (POPH), a type of pulmonary arterial hypertension (PAH). This disease has the same characteristic symptoms as those found in cases of PAH that are not associated with liver disease.

Symptoms the patient may notice are similar to those associated with classic PH, and include shortness of breath and limited ability to tolerate exercise.

Read more about Pulmonary Hypertension and Liver Disease | Watch webinar | Learn more about liver disease at the American Liver Foundation

Wednesday, October 15, 2014

Let's Walk Together PHor a Cure!

On November 2 the annual Walk for Hope will take place at the Maryland Zoo! Come and join us for an extraordinary community-building experience while we walk together to find a cure for pulmonary hypertension. Also, we will celebrate registrants fundraising initiatives with music, food, games and award prizes to top fundraisers.

Register now  

Free Lunch with Your Legislators

PHA's annual Congressional Luncheon on Nov. 13 is your opportunity to meet your legislators and educate them on why they need to make pulmonary hypertension a priority.

Let your voice be heard and register now!