Help us get the world (and the internet) buzzing about PH awareness for Rare Disease Day, and not the color of clothing!
Friday, February 27, 2015
Thursday, February 26, 2015
In the spirit of Rare Disease Day, which is this Saturday, make sure you are spreading the word about pulmonary hypertension and why early diagnosis matters. Since symptoms of PH are commonly associated with other diseases, it is often misdiagnosed. The average time between PH symptom onset and diagnosis is 2.8 years. This means that nearly 75 percent of patients have advanced PH (Class III or IV) by the time they are diagnosed. The Pulmonary Hypertension Association’s Early Diagnosis Campaign aims to facilitate accurate diagnosis and appropriate intervention early in the disease state with the goal of improved patient outcomes. Learn more about PHA’s Early Diagnosis Campaign.
Wednesday, February 25, 2015
Even though Rare Disease Day is on a Saturday (Feb. 28), you can still raise awareness at work over the next few days. We have great resources to help you support the larger rare disease community while raising awareness for pulmonary hypertension. Your workplace, or that of a friend or family member, is a great place to start. Order free global genes ribbons, take a Handprints Across America photo, or hand out PH wallet cards from your desk. Join 30 million Americans working to end rare diseases.
In honor of National Heart Month, a recently aired news segment raises pulmonary hypertension awareness and features a newly accredited PHA Center of Comprehensive Care: the University of Colorado’s PH Clinic. Dr. David Badesch, Director of the University of Colorado PH Clinic and Distinguished Advisor to the PHA Scientific Leadership Council, is also featured in the news segment. Watch it here.
Tuesday, February 24, 2015
For more information or to order your free postcards, contact Angelia.