Thursday, April 24, 2014

News: Northwestern Medicine Study Provides New Insights on Tissue Scarring in Scleroderma - A discovery by Northwestern Medicine scientists could lead to potential new treatments for breaking the cycle of tissue scarring in people with scleroderma. Read article

Support Team PHenomenal Hope: Add Your Name to the Race Map Today

Is your name on the map? If not, make sure to add it by April 30!

Support Team PHenomenal Hope (Team PH) as they cycle 3,000 miles nonstop across the continental United States this June, and bring the PH community closer to a cure. Every $15 donation makes you a sponsor of one mile on our virtual map, and you also get your name added to our real map at PHA’s International PH Conference in Indianapolis. By sponsoring miles, you join Team PH in their journey and support PHA.

We are racing toward the finish! All miles in the East Coast region have been sponsored. Please select a mile from the Pacific Coast, West or Midwest region to sponsor and get PHA’s Race of Our Lives campaign to our 3,000-mile goal.

Donations to the map will be accepted through this summer, but the deadline to get your name on our map at Conference is April 30. Add your name to the map today!

Wednesday, April 23, 2014

News: Chloe Temtchine's Story on xoJane

Chloe Temtchine got some more coverage of her story and her new PH anthem, Be Brave, in xoJane. Read the story

Honor Those Who’ve Made a Difference in Your Life

Many people are affected when your life or the life of your loved one has been touched by PH. PHA’s 2014 International PH Conference and Scientific Sessions is the perfect time to reflect and acknowledge those who’ve made a difference in your life.

You can create Notes of Thanks and Remembrance to be printed in the Conference slideshow. Make your appreciation or memories known to the more than 1,500 attendees expected at Conference (attendance not required).

Learn more and submit a note today

Learn About Exciting New Initiative

The PHCC Initiative: The Next Chapter of PH Management
April 30
3 p.m. ET/12 p.m. PT
webinar: online & phone

The Pulmonary Hypertension Care Centers (PHCC) initiative aims to establish a program for accreditation of centers with special expertise in pulmonary arterial hypertension, with the goal of improving overall quality of care and outcomes in patients with this life-threatening disease. Join us for an opportunity to ask PHCC medical leadership questions and learn more about the program.

  • Murali Chakinala, MD
  • Erika Berman-Rosenzweig, MD
  • Diane Ramirez, Patient Advocate
  • Melisa Wilson, ARNP, ACNP-BC
Register now

Reaching Out to Community Health Professionals

Lori Oppenheimer, PHA's allied health program associate, exhibited recently at the Virginia Association of Cardiovascular and Pulmonary Rehabilitation annual conference in Staunton, Virginia. We were pleased to connect with more than 90 community health professionals in the field of cardiopulmonary rehabilitation to discuss PHA programs and resources, including the PHA Survival Guide and Envelope of Hope.

Tuesday, April 22, 2014

Conference Early-Bird Registration Closes Soon!

PHA's 2014 International PH Conference and Scientific Sessions is only 58 days away, and more than 660 people have already taken advantage of our early-bird discount. Don't miss out on this opportunity to save $50 per person on registration fees!

Early-bird registration will close on May 1 at 4 p.m. ET.

Register now