Tuesday, August 25, 2015

Team PHenomenal Hope to Set the Pace at 2015 PHPN Symposium Opening Dinner

Anne-Marie Alderson (left) and Dr. Patricia "Patty" George
Team PHenomenal Hope members Dr. Patricia George and Anne-Marie Alderson will be the keynote speakers at the opening dinner for the PH Professional Network Symposium next month. They will share how they have taken competitive bike racing to the next level by using it as an opportunity to raise PH awareness.

Over the last few years, Team PHenomenal Hope has played a major role in raising funds and awareness for pulmonary hypertension – and the ultra-endurance team shows no sign of slowing down anytime soon. If team members aren’t racing, they’re training and preparing for the next race while also heavily promoting the PH cause.

Just this past week, Dr. George, a pulmonologist at University of Pittsburgh Medical Center (UPMC), took her bike across the Atlantic and competed in the Paris-Brest-Paris bike race - a 764-mile roundtrip course from Paris, France, to Brest, France, and then back to Paris.

When Team PH formed several years ago, they were partly inspired by Dr. Robert Frantz; Jessica Lazar, PA; and Dr. Raymond Benza and the trio's 2010 trek up Mt. Kilimanjaro to raise funds and awareness of PH. Team PH decided to do similar awareness and fund raising when they took on the Race Across America (RAAM) in 2014. RAAM, which is a 3,000-mile bike race from Oceanside, Calif., to Annapolis, Md., is longer than the Tour De France and considered to be one of the toughest bike races in the world. Dr. George and Alderson, along with their two teammates Ryanne “Ryo” Palermo and Stacie Truszkowski, two back-up racers, and countless crew members,  succeeded in completing the race in seven days, seven hours and 15 minutes.

Once the momentum began, Team PH could not stop with just one race. They have grown into a team of both men and women competing in endurance events across the country and around the world. This past June, Dr. George and Alderson took on the Race Across the West. This shorter, but still very challenging race, took the two from Oceanside, Calif., to Durango, Colo.

Dr. George and Alderson will share these experiences at the opening dinner for the PHPN Symposium in September. If you are a healthcare professional, be sure to register for this event now. If you are a patient or family member, please encourage the healthcare professional in your life to register. Online registration closes on Friday, Sept. 4. Learn more about Team PH at www.TeamPHenomenalHope.org.

Friday, August 21, 2015

Upcoming Webinar: Going Viral

Media Speakers Training 5: Going Viral
Monday, Aug. 24, 8:00 p.m. ET / 5:00 p.m. PT


Have an idea that could be the next ice bucket challenge? Register for this Monday's FREE "Going Viral" webinar. Learn what strategies and online resources you need to reach the masses! Register today!

Thursday, August 20, 2015

Dr. Patricia George Completes Paris-Brest-Paris Race

Doctors in the pulmonary hypertension community already do so much to help their patients and caregivers. This week, Dr. Patricia George of UPMC in Pittsburgh, Pa., literally went the distance and competed in the Paris-Brest-Paris bike race. Representing Team PHenomenal Hope, Patty biked 764 miles from Paris, France to Brest, France and back to Paris. She rode to raise awareness and funds for PH. Show your support!

Patty, PHA thanks you and your team. You are truly PHenomenal!

Wednesday, August 19, 2015

A PHriendly Fundraising Competition


To show support for "The Pacing Parson" and raise funds in his honor, the Generation Hope and Long-Term Survivors Advisory boards are engaging in a friendly competition to see which group can raise the most funds for this unique initiative. Want to make an impact? Make a donation today on the Generation Hope or Long-Term Survivors’ fundraising pages.

Monday, August 17, 2015

PHAR: PHA's Patient Registry


Have you heard about PHA’s latest initiative, the PHA Patient Registry (PHAR)? This exciting new program will:
  • Provide an understanding of national trends in pulmonary hypertension;
  • Assess patient outcomes; 
  • Facilitate research studies in PAH and CTEPH;
  • Ultimately improve quality of care and outcomes in PH.
Learn more about how you can get involved in creating and sustaining PHAR.

Friday, August 14, 2015

New PHA Classroom Webinar Recordings Available

Weren't able to catch some of our recent patient webinars? PHA Classroom has two new recorded webinars available for you to learn more about living with pulmonary hypertension.


View Lung Transplantation for PH or Navigating a Pulmonary Thromboendarterectomy (PTE) as a Family.

Wednesday, August 12, 2015

Celebrate PH Awareness Month with Periwinkle Pioneers

Pulmonary Hypertension Awareness Month is coming in November, and PHA wants all of you to help us mark the occasion. Our theme this year – Coloring the World Periwinkle for 25 Years – recognizes PHA’s upcoming 25th anniversary in 2016 and highlights all that our community has done to further the PH cause since PHA’s founding in 1991. Can you help us identify 25 people who have helped make the last 25 years significant in PH history?

Niagara Falls colored Periwinkle
PHA will recognize these 25 individuals – our Periwinkle Pioneers – in November as part of PH Awareness Month and throughout 2016 as part of our 25th Anniversary. The Periwinkle Pioneers are individuals who have played a significant role in the organization’s 25-year history. PHA invites anyone who has been a part of our history since our founding in 1991 to nominate a person who deserves to be recognized as one of our 25 Periwinkle Pioneers. The nominees can be individuals who have passed away and/or who are currently making a contribution to the organization.

The final 25 individuals will be chosen by a committee in time to recognize them throughout November. PHA’s 25 Periwinkle Pioneers will receive special recognition via an electronic photo album on our website and on PHA’s Facebook page and then, more formally, in 2016 at an art installation that PHA will unveil at our International PH Conference.

Nominations will open later this month. Stay tuned for more details. Who will you nominate?