Friday, December 19, 2014

Faces of PH: Janet Stone

"When you have severe PAH, it’s easy to want to give up ... Once I started painting, I began to realize this was becoming a significant part of my legacy - something that I would leave for my children and grandchildren to remember me by."

Read Janet's story and see some of her paintings

Thursday, December 18, 2014

Connect with One of Our PHriends

Our team of experienced patients and caregivers is ready to answer your questions about living with pulmonary hypertension. PH Email Mentors are caring and knowledgeable members of the PH community. They are available to answer questions or for ongoing email relationships up to three months in length. Mentors can't offer medical advice, but they can share what they've learned along the way, point you in the direction of information and resources of value, and work with you to develop strategies for coping with PH in your own life.

Or, if you’d like, you can apply to be a PHriend and help other patients like you.

Connect with PHriends | Apply to be a PHriend


Question of the Week

How do you like to dress up for the holidays? Do you like ugly sweaters, sparkles or zebra print? No matter your holiday style, check out our Instagram Holiday photos and share your own with the hashtag #PHAHolidays2014.

http://instagram.com/phassociation

CTEPH Awareness Day Post-Survey

Last month PHA launched the very first CTEPH Awareness Day along with new educational resources that we hope you’ve found useful. Please help us measure our impact by taking our short follow-up survey: 

Take the survey

Wednesday, December 17, 2014

Closed for the Holidays

Please be advised that all PHA Offices will be closed from Dec. 25, 2014, through Jan. 1, 2015, as we celebrate the season. We look forward to continuing our PHight when we re-open Jan. 2, 2015.


All of us at PHA wish you a happy and hopeful 2015.


Tuesday, December 16, 2014

News Special on President of Chinese PH Association

你会说中文吗?

President of iSEEK PH Center in China, Huanghuan, just underwent the country’s second-ever attempt at a second-round double lung transplant. CCTV ran a TV special on her story.

Watch the special (in Chinese only)

Dealing with the Challenges of an Invisible Illness

‘Tis the season for crowded parking lots and people rushing around to finish all of their holiday preparations. As if having pulmonary hypertension were not challenging enough, some PHers find themselves in situations where they feel harassed for utilizing handicapped parking spaces. It can be shocking, embarrassing and downright upsetting to be confronted by the cruelty of someone's judgment and misunderstanding when they assume that because they can't see anything physically wrong with you, you must be abusing the system. For those who use these spots, it can make going about their regular routine truly demoralizing.

Two community members share their experiences with these parking challenges and how they handled the situation. Also, PHA offers free informational wallet cards that you can carry with you to educate people blind to the effects of PH.

Read More