Friday, April 18, 2014

Question of the Week: Health Topics

Question of the Week: What health topic would you like to learn more about? Respond in the comments below.

Add to the World PH Day Photo Mosaic Today

Stand up and be represented! With a rare disease, strength and awareness really does come in numbers. Add your face and message to the World PH Day Photo Mosaic at and read through others’ stories and messages of hope.

Thursday, April 17, 2014

Celebrate Pathlight's Birthday Online

Did you know that Pathlight, PHA's quarterly newsletter, turns 24 this May? In celebration, for the first time ever, Pathlight is now available in an electronic form, easily accessible on your computer, tablet or smartphone. Access the spring 2014 issue online now

Pathlight is a PHA member benefit. To give everyone a chance to access the online version, the above link will be available to anyone until May 1. After May 1, you must be a PHA member to access the issue. Check your membership status now

Join Carol on Patient Support Call

Patients are raving “I can’t begin to tell you how helpful this call was…” Join Carol as she facilitates the monthly Patient Support Call on Thursday, April 24 at 8 p.m. ET/5 p.m. PT.

Register now

Race of Our Lives UP Contest Ends Saturday

Sponsor a mile on our Race of our Lives map by April 19 to be a part of the raffle to win an UP activity tracker bracelet from Jawbone.

Show your support for Team PHenomenal Hope and sponsor a mile TODAY while there is still time.

Wednesday, April 16, 2014

The PHCC Initiative: The Next Chapter of PH Management

April 30
3 p.m. ET/12 p.m. PT

The Pulmonary Hypertension Care Centers (PHCC) initiative aims to establish a program for accreditation of centers with special expertise in pulmonary arterial hypertension, with the goal of improving overall quality of care and outcomes in patients with this life-threatening disease. Join us for an opportunity to ask PHCC medical leadership questions and learn more about the program.

Presenters:
  • Murali Chakinala, MD
  • Erika Berman-Rosenzweig, MD
  • Diane Ramirez, Patient Advocate
  • Melisa Wilson, ARNP, ACNP-BC
Register now


PHA's Research Room: Leaving Your Mark in the Future of PH

PHA's International PH Conference and Scientific Sessions includes a Research Room dedicated to helping researchers further their studies by allowing for the collection of data from PH patients, as well as their family and friends. This event gives researchers the rare opportunity to collect data from the largest gathering of patients and families living with PH in the world.

Join this webinar to learn about past Research Room successes, and what individuals planning to participate in the Research Room may expect. While patient participation is valuable, there is often the opportunity for family and friends to participate as well.

Presenters:
  • Eric Austin, MD, MSCI
  • Micheala Aldred, PhD
  • Wendy Chung, MD, PhD
  • C. Gregory Elliott, MD

Register now